Not too sure how "good" it is but it could be worse right? lol
Matthew has been ill since Feb. 9th after three weeks of pneumonia (which I'm sure is still there) he has now come down with a brutal intestinal bug that is going around resulting in fevers over 105f =( Nicky just started to come down with the fever last night and Mike is starting to feel ill too (I have been for just over a week now). So far Joey doesn't have it *knock on wood* but it's looking like a not so great start to March break!! My surgery went well, the recovery not so well, long story but I guess we'll just have to wait and see how things go over the next few months lol
Nicky is going to start having his legs taped in an effort to lengthen his muscles, he had the test patch put on his back on Tuesday and it was not suppose to come off until tomorrow BUT Joey seen it and PULLED IT OFF and asks me what it was lol I'll have to talk to the therapist while she's in tomorrow and I'm betting they are going to have to start the test patch all over again! He is also finally being booked for his eye surgery, goes to the ENT the beginning of June (to get the sleep study booked), and will be heading to the feeding clinic shortly too to be assessed by them and be booked for his feeding study. I am so glad that the ball is starting to roll on all of that it's been a long time in waiting! He was also sent in for blood work to rule out a bleeding disorder and has been take off two of his meds (Naproxin and Advil, for pain, spasms, and migraines) because he was getting horrible unexplainable bruises (mainly on his forehead, he was black and blue from one side to the other....he tends to sleep on his forehead with his butt in the air so it was from the pressure on his head). The doctor, like us, feel it's because he's on so many meds that have side effects of easy bruising/bleeding so we agreed he should not be on any of the ones that aren't being used for something serious (ie none of his meds for his lungs we can give up). So far so good, I had taken him off the Naproxin and Advil on the Thursday before we went in as a precaution and since he's been off them for two weeks now he's had few new bruises and none as bad as the earlier ones. We are still waiting for the labs to come back though but so far it does look like we were right and it's just from the meds. He is being sent to a Neurologist to find better ways to take care of the pain and spasms and hopefully they'll be fast getting him in and see him before the spasms start to get bad again!
Mike's been given "maybe" dates for is work-up training lol now they are telling him he should be leaving the endish of April BUT we all know how they like to change their minds so I'm not holding my breath over it! Since we still don't have solid dates, and we are so use to him being pulled off tour, we haven't sat the kids down for the nice long "talk" yet. Hopefully soon they will give him solid dates so we can start preparing the boys for him to leave, that should be "fun", but I'm sure we can find lots of fun ways to keep them busy so time flies for them!
-Liz
Thursday, March 12, 2009
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