The roller coaster

It has been up and down here lately. Joey was taken by ambulance to the hospital the other night, it was scary! I stayed up late, too late, but I'm glad I did or I would have never heard him since our rooms aren't attached. At about 3am I could hear banging coming from his room and heard him make a little noise, it was only one noise but the banging continued so I rushed upstairs thinking he woke up and was playing. I got up there and noticed his light was still off so I KNEW something wasn't right, I turned the light on and walked in and he was seizing, he was laying against the wall and he was hitting his head off of it! I ran over to him and he was foaming (for lack of better word) at the month, his pupils were massive (not responding to light), and was completely unresponsive. I ran down and got his monitor so I could check his blood sugar (thinking it was too high) by the time I got back up he was no longer seizing. I checked his sugars and it said 1.3, so I did it again thinking it was wrong and it came out as 1.6, I woke Mike up and phoned 911, we couldn't get anything into him to treat him. By the time the ambulance got here he was very violent and agitated, it took FOUR OF US to hold him down so they could get a sugar reading (they had to do it twice) and again so they could give him a shot of glucagon.

They got him packed up to go to the hospital and I rode with him while Mike stayed home with Nicky and Matthew, he fought the whole way there freaking out. At a few points he fought so hard he had the straps around his neck!!! When we got to the hospital they were just about to put him into a curtain when he started scream and freaking out even worse "I CAN'T SEE, I CAN'T SEE. WHAT'S WRONG WITH ME I CAN'T SEE" the doctor (who was standing beside us) yelled for them to phone CT and get him in NOW. He wanted to sedate him right then and there but the nurses argued that they could start the IV without it (the IV sedation was less potent and had less side effects then the needle he was trying to give) it took two tries but they got it, but it was taking too long and he was freaking out horribly so the doctor ran over and gave him the shot.

We immediately ran too CT, the doctor yelled at them the whole way there, they had a sedated child and the nurses did NOT hook him to the monitor or have O2 ready for him. It was under the bed and the nurse wasn't even sure if it was full. The doctor LOST IT on them! We got to CT and the tech was MIA, he was pissed, they just phoned and he said he was there . They finally got it done and the doctor told me it looked fine but he would check it out more indepth on his computer. It ended up being fine, the temporary vision loss and severe head ache he had was from the seizure he figured....and banging his head off the wall. He went until noon before he had a normal reading and we were discharged at that point.

I hope to God we NEVER have to go through that again!

Now on to the next, Matthew has been getting blue lips and tongue, and not like the old spells that were "fine", he'll be playing or overactive and his lips will go blue, took a bit before we noticed his tongue was too (which is new, only happened once before but they figured it was because he was later dxed with pneumonia). We now have to wait for the doctor's office to get back to us with an appointment...hopefully they will get him in fast and hopefully we will be told he is fine! He is our only "healthy" child, it would be devistaing to find out there is something wrong with him too (beside the minor things that aren't harmful).

Nicholas is doing great though, he is having so much fun in our new huge yard, he also has a new little friend that lives right next door and he is very very excited about going back to school shortly. =)

Please keep the boys in your thoughts and prayers, thank you!