It has been up and down here lately. Joey was taken by ambulance to the hospital the other night, it was scary! I stayed up late, too late, but I'm glad I did or I would have never heard him since our rooms aren't attached. At about 3am I could hear banging coming from his room and heard him make a little noise, it was only one noise but the banging continued so I rushed upstairs thinking he woke up and was playing. I got up there and noticed his light was still off so I KNEW something wasn't right, I turned the light on and walked in and he was seizing, he was laying against the wall and he was hitting his head off of it! I ran over to him and he was foaming (for lack of better word) at the month, his pupils were massive (not responding to light), and was completely unresponsive. I ran down and got his monitor so I could check his blood sugar (thinking it was too high) by the time I got back up he was no longer seizing. I checked his sugars and it said 1.3, so I did it again thinking it was wrong and it came out as 1.6, I woke Mike up and phoned 911, we couldn't get anything into him to treat him. By the time the ambulance got here he was very violent and agitated, it took FOUR OF US to hold him down so they could get a sugar reading (they had to do it twice) and again so they could give him a shot of glucagon.
They got him packed up to go to the hospital and I rode with him while Mike stayed home with Nicky and Matthew, he fought the whole way there freaking out. At a few points he fought so hard he had the straps around his neck!!! When we got to the hospital they were just about to put him into a curtain when he started scream and freaking out even worse "I CAN'T SEE, I CAN'T SEE. WHAT'S WRONG WITH ME I CAN'T SEE" the doctor (who was standing beside us) yelled for them to phone CT and get him in NOW. He wanted to sedate him right then and there but the nurses argued that they could start the IV without it (the IV sedation was less potent and had less side effects then the needle he was trying to give) it took two tries but they got it, but it was taking too long and he was freaking out horribly so the doctor ran over and gave him the shot.
We immediately ran too CT, the doctor yelled at them the whole way there, they had a sedated child and the nurses did NOT hook him to the monitor or have O2 ready for him. It was under the bed and the nurse wasn't even sure if it was full. The doctor LOST IT on them! We got to CT and the tech was MIA, he was pissed, they just phoned and he said he was there . They finally got it done and the doctor told me it looked fine but he would check it out more indepth on his computer. It ended up being fine, the temporary vision loss and severe head ache he had was from the seizure he figured....and banging his head off the wall. He went until noon before he had a normal reading and we were discharged at that point.
I hope to God we NEVER have to go through that again!
Now on to the next, Matthew has been getting blue lips and tongue, and not like the old spells that were "fine", he'll be playing or overactive and his lips will go blue, took a bit before we noticed his tongue was too (which is new, only happened once before but they figured it was because he was later dxed with pneumonia). We now have to wait for the doctor's office to get back to us with an appointment...hopefully they will get him in fast and hopefully we will be told he is fine! He is our only "healthy" child, it would be devistaing to find out there is something wrong with him too (beside the minor things that aren't harmful).
Nicholas is doing great though, he is having so much fun in our new huge yard, he also has a new little friend that lives right next door and he is very very excited about going back to school shortly. =)
Please keep the boys in your thoughts and prayers, thank you!
Friday, August 14, 2009
Friday, July 24, 2009
long winded update
It's been busy here lately, very busy, Nicholas had his eye surgery and everything went smoothly =) and by his surgeon he is the only child she's ever had that didn't end up with some kind of infection post-op. His eyes look great! She was telling us he would most likely need a second surgery because his eyes were starting to pull upwards and this surgery would not fix it, but guess what? His eyes since surgery have not pulled upwards at all so by the looks of things he will NOT need a second surgery *yippee*
Now for the downside (why does there always seem to be one?) Nicky had his feeding study, he didn't aspirate during it BUT came close and is pooling a lot of fluid in the back of his throat, even though he didn't aspirate during it she figures that when he's ill he does since he has extra problems with being "noisy" when he's sick. Now if that wasn't enough his test results are all in, he is slightly Vit K deficient (Vit K is needed for some clotting factors) which does explain the bruising he was getting. He also has that thalassemia trait, which confirms the diagnosis of thalassemia in myself in a round about way, my neurologist brought up the possibility when I was pregnant with Matthew because of my constant low hemoglobin for no known reason (doctors never checked for thalassemia because it doesn't fit with my ethnic background). Nicholas has the "cis" type, meaning he got both genes on one chromosome, since DH has no thalassemia genes it means they had to of come from me and because my hemoglobin is very low they put two and two together without having to stick me any more times to come up with me having it (I have three defective genes, one from one parent and two from the other). On top of that, yes there is more, he is also showing a higher then normal but not screaming "somethings wrong" level of fetal hemoglobin, more then likely HPFH but we wont know for sure until more tests are done later. His doctor just wants to watch it for now, he says it's higher then expected and higher then he's seen before but not high enough to warrant more tests just yet.
We have also moved, we are in the PMQ's now, it is so nice to actually have room! We got a 3bdrm townhouse and it is CHEAP, we are paying less here then we were for a small 2bdrm apartment! The kids have loads of room to run and pay and there is a playground within spitting distance of our unit. Mike's CT is going through so they ended up scrapping tour on him, they gave him a choice "go on tour or take the transfer" while tour pay is awesome but in the long run the CT is going to give us more money. Mike also finally gets his wish and he will soon be Air Force =) I am so happy and proud of him!
Both the other boys are doing great, Joey did have an issue with his A1C thanks to his old school but it is coming down nicely (2.4% drop in a month!), he also finally has his IPRC and IEP and is identified at the board level which means no more yearly testing that goes no where. He will be starting a special program next year and it doesn't matter where we go every school has to honor this because of him being identified at the top level. Hopefully this will mean we see huge improvements at school not only in his work but overall, especially in his stress level, we are hoping he will start to really enjoy going to school again and not be so frustrated with it all.
=) while I will update again when I have time. Nicky has a few more appointments to go, he has the sleep study and he's been referred to the breathing clinic so hopefully his treatment will all start to come together now and he'll be a lot healthier from it.
Now for the downside (why does there always seem to be one?) Nicky had his feeding study, he didn't aspirate during it BUT came close and is pooling a lot of fluid in the back of his throat, even though he didn't aspirate during it she figures that when he's ill he does since he has extra problems with being "noisy" when he's sick. Now if that wasn't enough his test results are all in, he is slightly Vit K deficient (Vit K is needed for some clotting factors) which does explain the bruising he was getting. He also has that thalassemia trait, which confirms the diagnosis of thalassemia in myself in a round about way, my neurologist brought up the possibility when I was pregnant with Matthew because of my constant low hemoglobin for no known reason (doctors never checked for thalassemia because it doesn't fit with my ethnic background). Nicholas has the "cis" type, meaning he got both genes on one chromosome, since DH has no thalassemia genes it means they had to of come from me and because my hemoglobin is very low they put two and two together without having to stick me any more times to come up with me having it (I have three defective genes, one from one parent and two from the other). On top of that, yes there is more, he is also showing a higher then normal but not screaming "somethings wrong" level of fetal hemoglobin, more then likely HPFH but we wont know for sure until more tests are done later. His doctor just wants to watch it for now, he says it's higher then expected and higher then he's seen before but not high enough to warrant more tests just yet.
We have also moved, we are in the PMQ's now, it is so nice to actually have room! We got a 3bdrm townhouse and it is CHEAP, we are paying less here then we were for a small 2bdrm apartment! The kids have loads of room to run and pay and there is a playground within spitting distance of our unit. Mike's CT is going through so they ended up scrapping tour on him, they gave him a choice "go on tour or take the transfer" while tour pay is awesome but in the long run the CT is going to give us more money. Mike also finally gets his wish and he will soon be Air Force =) I am so happy and proud of him!
Both the other boys are doing great, Joey did have an issue with his A1C thanks to his old school but it is coming down nicely (2.4% drop in a month!), he also finally has his IPRC and IEP and is identified at the board level which means no more yearly testing that goes no where. He will be starting a special program next year and it doesn't matter where we go every school has to honor this because of him being identified at the top level. Hopefully this will mean we see huge improvements at school not only in his work but overall, especially in his stress level, we are hoping he will start to really enjoy going to school again and not be so frustrated with it all.
=) while I will update again when I have time. Nicky has a few more appointments to go, he has the sleep study and he's been referred to the breathing clinic so hopefully his treatment will all start to come together now and he'll be a lot healthier from it.
Thursday, March 12, 2009
Good Thursday Morning lol
Not too sure how "good" it is but it could be worse right? lol
Matthew has been ill since Feb. 9th after three weeks of pneumonia (which I'm sure is still there) he has now come down with a brutal intestinal bug that is going around resulting in fevers over 105f =( Nicky just started to come down with the fever last night and Mike is starting to feel ill too (I have been for just over a week now). So far Joey doesn't have it *knock on wood* but it's looking like a not so great start to March break!! My surgery went well, the recovery not so well, long story but I guess we'll just have to wait and see how things go over the next few months lol
Nicky is going to start having his legs taped in an effort to lengthen his muscles, he had the test patch put on his back on Tuesday and it was not suppose to come off until tomorrow BUT Joey seen it and PULLED IT OFF and asks me what it was lol I'll have to talk to the therapist while she's in tomorrow and I'm betting they are going to have to start the test patch all over again! He is also finally being booked for his eye surgery, goes to the ENT the beginning of June (to get the sleep study booked), and will be heading to the feeding clinic shortly too to be assessed by them and be booked for his feeding study. I am so glad that the ball is starting to roll on all of that it's been a long time in waiting! He was also sent in for blood work to rule out a bleeding disorder and has been take off two of his meds (Naproxin and Advil, for pain, spasms, and migraines) because he was getting horrible unexplainable bruises (mainly on his forehead, he was black and blue from one side to the other....he tends to sleep on his forehead with his butt in the air so it was from the pressure on his head). The doctor, like us, feel it's because he's on so many meds that have side effects of easy bruising/bleeding so we agreed he should not be on any of the ones that aren't being used for something serious (ie none of his meds for his lungs we can give up). So far so good, I had taken him off the Naproxin and Advil on the Thursday before we went in as a precaution and since he's been off them for two weeks now he's had few new bruises and none as bad as the earlier ones. We are still waiting for the labs to come back though but so far it does look like we were right and it's just from the meds. He is being sent to a Neurologist to find better ways to take care of the pain and spasms and hopefully they'll be fast getting him in and see him before the spasms start to get bad again!
Mike's been given "maybe" dates for is work-up training lol now they are telling him he should be leaving the endish of April BUT we all know how they like to change their minds so I'm not holding my breath over it! Since we still don't have solid dates, and we are so use to him being pulled off tour, we haven't sat the kids down for the nice long "talk" yet. Hopefully soon they will give him solid dates so we can start preparing the boys for him to leave, that should be "fun", but I'm sure we can find lots of fun ways to keep them busy so time flies for them!
-Liz
Matthew has been ill since Feb. 9th after three weeks of pneumonia (which I'm sure is still there) he has now come down with a brutal intestinal bug that is going around resulting in fevers over 105f =( Nicky just started to come down with the fever last night and Mike is starting to feel ill too (I have been for just over a week now). So far Joey doesn't have it *knock on wood* but it's looking like a not so great start to March break!! My surgery went well, the recovery not so well, long story but I guess we'll just have to wait and see how things go over the next few months lol
Nicky is going to start having his legs taped in an effort to lengthen his muscles, he had the test patch put on his back on Tuesday and it was not suppose to come off until tomorrow BUT Joey seen it and PULLED IT OFF and asks me what it was lol I'll have to talk to the therapist while she's in tomorrow and I'm betting they are going to have to start the test patch all over again! He is also finally being booked for his eye surgery, goes to the ENT the beginning of June (to get the sleep study booked), and will be heading to the feeding clinic shortly too to be assessed by them and be booked for his feeding study. I am so glad that the ball is starting to roll on all of that it's been a long time in waiting! He was also sent in for blood work to rule out a bleeding disorder and has been take off two of his meds (Naproxin and Advil, for pain, spasms, and migraines) because he was getting horrible unexplainable bruises (mainly on his forehead, he was black and blue from one side to the other....he tends to sleep on his forehead with his butt in the air so it was from the pressure on his head). The doctor, like us, feel it's because he's on so many meds that have side effects of easy bruising/bleeding so we agreed he should not be on any of the ones that aren't being used for something serious (ie none of his meds for his lungs we can give up). So far so good, I had taken him off the Naproxin and Advil on the Thursday before we went in as a precaution and since he's been off them for two weeks now he's had few new bruises and none as bad as the earlier ones. We are still waiting for the labs to come back though but so far it does look like we were right and it's just from the meds. He is being sent to a Neurologist to find better ways to take care of the pain and spasms and hopefully they'll be fast getting him in and see him before the spasms start to get bad again!
Mike's been given "maybe" dates for is work-up training lol now they are telling him he should be leaving the endish of April BUT we all know how they like to change their minds so I'm not holding my breath over it! Since we still don't have solid dates, and we are so use to him being pulled off tour, we haven't sat the kids down for the nice long "talk" yet. Hopefully soon they will give him solid dates so we can start preparing the boys for him to leave, that should be "fun", but I'm sure we can find lots of fun ways to keep them busy so time flies for them!
-Liz
Saturday, February 14, 2009
ACK!
haha so I'm booked for surgery on March 4th (oh yippee!) not only did I severe the nerve BUT I nicked the tendon but because the doctor at emerg didn't even think of this possibility it was not splinted and I was not told to keep it still. So with my moving it the surgeon said I made the little "nick" into either a complete severe or close enough to it, because of my need to constantly be lifting Nicky he gave me two choices #1 Leave it alone, deal with the loss of feeling and limited mobility/loss of function or #2 have surgery to fix it, be in a brace for 6-8wks and deal with physio until the strength is built back up and not be able to use my hand (lift Nicky or Matthew with that hand) for MONTHS! So I picked surgery, at the very worst if the healing or surgery doesn't go as planned, because surgery is not 100% guarantied to work, I will have the same result as doing nothing so might as while give surgery a shot at least right? My IL's are taking time off work to help me out with the boys during and after surgery since Mike is going to be away on a major EX up north....way way up north lol talk about great timing eh? but with their help I will have the first few weeks of healing covered and hopeful obtain the BEST results from surgery.
Matthew is terribly ill right now, which makes everything so much worse, we have no clue what is wrong with him. He started off Monday with a fever, Tuesday with fever, vomiting/diarrhea, and a nasty rash and very itchy around the mouth, Wednesday Mike booked an appointment with the nurse at the doctors office and we took him in, of course I get there and he has no fever so she though he was turning the corner, she did send away a swab for Strep since she couldn't get a good look at his throat but nothing looked out of the ordinary. Thursday it all went down hill fast, he woke up with a temp ranging between 102.5-103.5 and by the afternoon it was 104 and nothing was bringing it down and he was not wanting to eat or drink and looked really really bad. We ended up taking him to the ER to get checked out and they did not like it either, the did a cath to get urine and blood work, his urine came up with glucose and blood so it scared the crap out of us since Joey is diabetic. Thankfully his blood came back with normal glucose levels BUT it also came back completely normal for everything else too, so they sent it and the urine off to be cultured. They ended up sending us home since we got the fever to break and finally got a wet diaper out of him but were told to go back Saturday if he still had a fever and the results from the cultures would be back so they would know if anything was up there. While Friday morning he seemed to be perking up, he was finally moving about and ate a cookie, not the healthiest thing in the world but at least it was something, his fever was also controllable and lower. While fast forward to 9:30pm, fever is climbing and not dropping with tylenol or advil, and he looks like crap again and is hardly drinking....so we are definitely heading back to the ER in the morning! I have dealt with a ton of sickness before, horrible infections with Nicky, and believe me he looks worse then Nicky ever has, I have NEVER had an illness scare me so much he looks REALLY REALLY BAD! Please say a little pray for him and hope they figure out what it is and that he gets better very fast, he has never been this sick before and it's just breaking our hearts to see him like this. Please also pray that he doesn't end up with whooping cough, he has ended up with the flu really bad all four times he was suppose to get the last shot for it so he's not fully vaccinated and while we were at the ER a lady had all three of her kids in to be checked out, her youngest kept coming over and getting in Matthews face and when the doctor finally came out to see her again she confirmed that they all had whooping cough!!!! They said it would be a "slim chance" he would get it but because he's already sick that slim chance is a bit higher. Whooping cough is the last thing we need in this house!!! Because her kids had their shots up to date (or so she says) the resident didn't put them in the lock down room thinking they most likely had pneumonia so about 15 families were exposed to it while waiting to be seen or discharged. NOT FUN!
On the upside Nicky is doing great, he has never been better, he has learned to climb onto things so he's been perfecting climbing on anything he thinks can be climbed onto lol His school is very happy with him and he has not been sick for the longest stretch yet...so lets hope he doesn't get whatever Matthew has!
While I will let you know how our trip to the ER turns out tomorrow when we get back, that is if they don't admit him, Mike has all next week off lol his B-Day gift to himself so at least someone will be here to get the other two ready for school and watch them until Matthew is feeling better.
-Liz
Matthew is terribly ill right now, which makes everything so much worse, we have no clue what is wrong with him. He started off Monday with a fever, Tuesday with fever, vomiting/diarrhea, and a nasty rash and very itchy around the mouth, Wednesday Mike booked an appointment with the nurse at the doctors office and we took him in, of course I get there and he has no fever so she though he was turning the corner, she did send away a swab for Strep since she couldn't get a good look at his throat but nothing looked out of the ordinary. Thursday it all went down hill fast, he woke up with a temp ranging between 102.5-103.5 and by the afternoon it was 104 and nothing was bringing it down and he was not wanting to eat or drink and looked really really bad. We ended up taking him to the ER to get checked out and they did not like it either, the did a cath to get urine and blood work, his urine came up with glucose and blood so it scared the crap out of us since Joey is diabetic. Thankfully his blood came back with normal glucose levels BUT it also came back completely normal for everything else too, so they sent it and the urine off to be cultured. They ended up sending us home since we got the fever to break and finally got a wet diaper out of him but were told to go back Saturday if he still had a fever and the results from the cultures would be back so they would know if anything was up there. While Friday morning he seemed to be perking up, he was finally moving about and ate a cookie, not the healthiest thing in the world but at least it was something, his fever was also controllable and lower. While fast forward to 9:30pm, fever is climbing and not dropping with tylenol or advil, and he looks like crap again and is hardly drinking....so we are definitely heading back to the ER in the morning! I have dealt with a ton of sickness before, horrible infections with Nicky, and believe me he looks worse then Nicky ever has, I have NEVER had an illness scare me so much he looks REALLY REALLY BAD! Please say a little pray for him and hope they figure out what it is and that he gets better very fast, he has never been this sick before and it's just breaking our hearts to see him like this. Please also pray that he doesn't end up with whooping cough, he has ended up with the flu really bad all four times he was suppose to get the last shot for it so he's not fully vaccinated and while we were at the ER a lady had all three of her kids in to be checked out, her youngest kept coming over and getting in Matthews face and when the doctor finally came out to see her again she confirmed that they all had whooping cough!!!! They said it would be a "slim chance" he would get it but because he's already sick that slim chance is a bit higher. Whooping cough is the last thing we need in this house!!! Because her kids had their shots up to date (or so she says) the resident didn't put them in the lock down room thinking they most likely had pneumonia so about 15 families were exposed to it while waiting to be seen or discharged. NOT FUN!
On the upside Nicky is doing great, he has never been better, he has learned to climb onto things so he's been perfecting climbing on anything he thinks can be climbed onto lol His school is very happy with him and he has not been sick for the longest stretch yet...so lets hope he doesn't get whatever Matthew has!
While I will let you know how our trip to the ER turns out tomorrow when we get back, that is if they don't admit him, Mike has all next week off lol his B-Day gift to himself so at least someone will be here to get the other two ready for school and watch them until Matthew is feeling better.
-Liz
Saturday, February 07, 2009
February 7th
While Mike is in the field this weekend and we have all been bored out of our minds lol No car and since the stroller is still broken (THANKS MIKE!!) we haven't been running around too much, we did go to the mall Friday night and that was horrible! Every time I turned around the wheel was coming off, not to mention all of the boys were in a mood lol basically grabbed milk and tried to run home asap. By the looks of things though my appointment with plastics is not going to be a pleasant one on Monday, my finger is even worse, painful pins and needles and parts of it are still completely numb. There has been no real improvement except for the swelling going down a bit and getting feeling back below the cut (lost feeling there from the swelling not the cut). Everyone is laughing but agreeing that surgery is most likely in my future, the laughing they may try to stifle but come on people....I cut my finger I didn't lose my hearing!!! lmao I know you are laughing at me, heck I'm still laughing at me! All I can say about now is this year is going to be ummm....interesting???!? Just wish I could use it, it's a PITA, it's been doing nothing but getting in my way I'll grab at something and bend it backwards, sure the finger itself doesn't hurt but I can still feel it trying to rip away from my hand and THAT hurts lol It's either that or like when I am typing, I *think* I'm hitting the keys with it because my mind for a second forgets it's not working and I'll look up and every letter my mind thought I hit with it are missing so I have to go back and fix everything. I wont even get into getting the kids dressed, carrying the babies around, or trying to put bottle bags in the bottles HAHAHA lets just say I've been having a ton of fun the past few days....thank goodness Joey is old enough to help out or I would be screwed! Never realized how hard coat zippers are to do up when you can't grab the coat properly. Okay I'm done my *poor me* post lol guess I'll just have to stop whining and learn to deal with it, I sure am the smartest person alive....next time I will at least make sure I do a better job at trying to take my finger off haha
-Liz
-Liz
Wednesday, February 04, 2009
Nicky's big milestone
Nicky has been asking since getting home tonight to USE THE POTTY!!!!! First time he sat on it he sat there for 10mins and didn't manage to go but while I was getting dinner ready he said he "had to go" but since I was dumping a pot of hot water I wasn't in a position to run and put him on. Mike finally went over after I called for him, about 2 minutes later, and put him on he actually HELD IT until he put him on the potty and for the first time he went pee-pee on the potty! He is so proud of himself and is really into wanting to use it, I am so happy, I thought for sure he wouldn't be ready for at least another few months to a year since he's had no interest and quite a fear of the potty. His school is doing an awesome job without even knowing it lol he sees all the other big kids using the potty and he wants to be just like them =) Now Nicky has even got Matthew thinking it's cool lol as soon as he seen us making a big deal about Nicky going he started trying to strip his diaper off and wanted to sit on it too lol Looks like we might have an easy time potty training Matthew if he keeps wanting to do exactly like his brother! So far because of wanting to do what they do he uses a spoon/baby fork to eat and drinks from a cup....a CUP....not a sipping cup a big peoples cup! If he's thirsty now and someone has their cup down he'll go over and grab it and take a drink, he's still pretty messy but he will take a cup over the bottle any day. Matthew is progressing so fast because of his brothers and it's amazing to watch him try to grow up faster then we would like lmao He's not going to be our little baby much longer if he keeps this up!
hahaha and of course on the down side I put a knife through my finger today and have to see a plastic surgeon, I've either nicked the nerve or severed it, the doctor at the ER said if it's nicked I will have feeling back in it by the time I see the plastic surgeon next week, if not I will have to have surgery to repair it. BOOO! But OMG I have NEVER seen a finger bleed so bad in my life, it looks like someone was murdered in our place there is blood EVERYWHERE! I felt so ill by the time I got it to stop, every time my blood pulsed through my finger it went shooting two inches high in the air. I lost about as much as I would have if I would have donated blood.....what a waste! But with my hemoglobin extremely low the blood lose has hit me hard, I have the chills and feel faint, the exact same symptoms I had last time I donated blood. This week has really been a horrible one for us, between me knifing myself and our car endlessly breaking down and getting into accidents (City of Toronto snow plow took our mirror off and a guy cut Mike off today and landed him in a snow bank for 45mins lol). I can't wait until some good luck starts rolling our way, if it doesn't soon this is going to be another really really long year!
-Liz
hahaha and of course on the down side I put a knife through my finger today and have to see a plastic surgeon, I've either nicked the nerve or severed it, the doctor at the ER said if it's nicked I will have feeling back in it by the time I see the plastic surgeon next week, if not I will have to have surgery to repair it. BOOO! But OMG I have NEVER seen a finger bleed so bad in my life, it looks like someone was murdered in our place there is blood EVERYWHERE! I felt so ill by the time I got it to stop, every time my blood pulsed through my finger it went shooting two inches high in the air. I lost about as much as I would have if I would have donated blood.....what a waste! But with my hemoglobin extremely low the blood lose has hit me hard, I have the chills and feel faint, the exact same symptoms I had last time I donated blood. This week has really been a horrible one for us, between me knifing myself and our car endlessly breaking down and getting into accidents (City of Toronto snow plow took our mirror off and a guy cut Mike off today and landed him in a snow bank for 45mins lol). I can't wait until some good luck starts rolling our way, if it doesn't soon this is going to be another really really long year!
-Liz
Saturday, January 31, 2009
Pics of the boys
Joey and Matthew Christmas Morning
Nicky Christmas morning at Grandma and Grandpa's
Matthew 9 months 5 days.
Christmas stop to auntie Lori's
My Pooh Bear and Tigger lol
Christmas Morning
the good and the bad.
A new year but the same old same old. I will start with the biggest
and best news....On January 18th at 11pm Matthew WALKED! =) yep we
have a walker, he is exactly 4 days shy of 10 months old, our youngest
walker yet and a HUGE shock! We actually MISSED his first steps, Mike
and I were talking and he was standing at the couch and the next thing
we know he's standing at the exersaucer and we were both looking at
him going "did he just walk?". So I put him back a few feet and
cheered him on and he did it again, he walked halfway there and then
plopped down on his butt and crawled the rest of the way lol After
another hour of walking around he passed out he loves this new skill!
now for the not so good.
Nicholas has a new specialist and it turned out to be a mixed
blessing, his old ped from the asthma clinic is off on Mat leave and
the lady taking over is a respiratory specialist from Sick Kids
Hospital. After reviewing his history and doing her check up the poor
lady almost lost it, his "normal" day-snoring that we have been told
SINCE BIRTH is normal is "Absolutely NOT normal and very far from it"
and she is almost 100% certain that he is having micro-collapses in
his lungs while he is sleeping. He is being booked for a sleep study
and a feeding study asap, but even as an emergency she said it would
take SIX MONTHS to get it done! She said her biggest concern in
micro-collapses but it could be one of two things or both, he is
either having the micro-collapses, having food and liquid entering his
lungs while eating/drinking, or both and is determined to find a cause
for his repeat infections and severe asthma attacks before she leaves
at the end of the year. She changed his meds up a bit and we go back
in 2months to see how they are working and to see if he's been sick
again. So so far this year he will be having two surgeries, a sleep
study, and a feeding study it is looking to be another very very busy
year!
and best news....On January 18th at 11pm Matthew WALKED! =) yep we
have a walker, he is exactly 4 days shy of 10 months old, our youngest
walker yet and a HUGE shock! We actually MISSED his first steps, Mike
and I were talking and he was standing at the couch and the next thing
we know he's standing at the exersaucer and we were both looking at
him going "did he just walk?". So I put him back a few feet and
cheered him on and he did it again, he walked halfway there and then
plopped down on his butt and crawled the rest of the way lol After
another hour of walking around he passed out he loves this new skill!
now for the not so good.
Nicholas has a new specialist and it turned out to be a mixed
blessing, his old ped from the asthma clinic is off on Mat leave and
the lady taking over is a respiratory specialist from Sick Kids
Hospital. After reviewing his history and doing her check up the poor
lady almost lost it, his "normal" day-snoring that we have been told
SINCE BIRTH is normal is "Absolutely NOT normal and very far from it"
and she is almost 100% certain that he is having micro-collapses in
his lungs while he is sleeping. He is being booked for a sleep study
and a feeding study asap, but even as an emergency she said it would
take SIX MONTHS to get it done! She said her biggest concern in
micro-collapses but it could be one of two things or both, he is
either having the micro-collapses, having food and liquid entering his
lungs while eating/drinking, or both and is determined to find a cause
for his repeat infections and severe asthma attacks before she leaves
at the end of the year. She changed his meds up a bit and we go back
in 2months to see how they are working and to see if he's been sick
again. So so far this year he will be having two surgeries, a sleep
study, and a feeding study it is looking to be another very very busy
year!
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